(What is this cup? You’ll have to read….)

Living with a chronic illness is like dancing with an unpredictable partner. You never know when the next twist or turn will come…

When I was younger, I was reminded every morning at school, during the pledge of allegiance when we put “hand to heart,” that mine was on the opposite side.

So, I was knee-deep in Kartagener’s Syndrome research, and I stumbled upn this gem: “While there is currently no cure for Kartagener’s…

So, in the last post, I poked fun at my photo taken over twenty years ago about needing three things next to me at all times—water, tissues, and lip balm. But I wasn’t kidding. Living with a chronic pulmonary…

I’m pulling back the curtain on a chapter of my life that's been tucked away for too long. Back then, keeping things hidden away was my survival tactic—a shield against the …

Alright, let's dive into the gritty details of the symptoms. It's not the most comfortable topic to lay out, and honestly, it's probably the most exposed I've ever felt, putting it all down in black and white. But hey, my aim is to be as transparent as possible….

My mother flew to Tennessee from Florida to help me recover from my latest hospital visit while Eric had to be out of town for his workshops. A couple of days ago, while we were sitting together in our living room, I asked her what one of her earliest memories was of any doctor trying to figure out why I had a “cold” …

Hospital stays can be more frequent than I'd like, but I try, no matter how I feel, to make the most of them by engaging with everyone involved in my care—from the nurses to the food service, even the folks cleaning my room.

(Note: This is my actual x-ray from over ten years ago and yes, the image is backward because my heart and organs are on opposite sides.)

In keeping it light, let's dive into the fascinating world of cilia – those microscopic hair-like wonders in our bodies that make things tick. But, hey, I promise …